Get the Support You Need to Survive & Thrive Despite Migraine
Support group series to learn essential coping and migraine management skills. Groups forming now!
Migraine is much more than a headache. Because few realize that it’s a neurobiological disease, people with migraine may experience stigma and discrimination. You may feel isolated and shamed, as if no one understands. Our Migraine Community Groups bring together the people just like you to connect, discover and share. We provide helpful resources and supportive discussions to help you better navigate life with migraine.
Finding other people with migraine who understand what you’re experiencing can be tough. We bring together men and women from each community to connect with each other, forming supportive local networks that can get you through the toughest of days.
Discover new learnings and insights while exploring themes and topics that affect not only your life, but those around you. You’ll understand more about migraine, yourself and others to make living with migraine easier.
Engage or Share
Each group is professionally facilitated by a licensed therapist or trained group leader who will guide the discussion in a safe, supportive and private environment. Explore topics like Isolation, Battling Stigma, Communication with Family and Friends, and Advocating for Better Care. Group sizes are limited to allow each person the chance to share and grow.
Due to the COVID-19 situation we have temporarily suspended all in-person groups and have moved all meetings to a virtual format. Please join us via Zoom where you can still connect with your community and feel supported.
Meet the Leaders
Kelly is a seasoned Clinical Nurse Specialist of 35 years. As a CNS, Kelly was deeply involved and dedicated to patient, family and medical community education. She also spent a great deal of time being an advocate on a national level for patient rights, program funding and patient/family empowerment and education.
Kelly has been published, writing both clinical articles and chapters for textbooks. She served as a member of a National Commission and participated in the publication of the report and its presentation to Congress. As part of her CNS and advocacy roles Kelly spoke on the National and local level on a variety of topics.
Kelly’s migraine story began in childhood and progressed throughout her life until finally being diagnosed after 33 years. Her migraines transitioned to intractable chronic daily migraine 22 years ago; where her migraine status remains to this day.
Kelly is involved in several migraine and chronic pain organizations and is a Community Group Facilitator for Miles for Migraine. Kelly is passionate and committed to making the “invisible”… “visible”. Kelly has one child, a daughter, who also has migraine.
Diane is a lifelong Philadelphian, graduating from Hahnemann University before spending 30 years in the pharmaceutical industry. During her career, Diane facilitated research in drug discovery with a focus on pain relief. She has suffered with chronic migraine for 20 years which ultimately forced her to leave a career that she loved. Diane joined Miles for Migraine in 2019, volunteering as a facilitator for the Migraine Community Group at Jefferson Headache Center. Working with Miles for Migraine has allowed Diane to pursue her passion of engaging with and helping others, as she focuses on spreading migraine awareness, sharing her personal story, and supporting others through their migraine journey.
In November of 2006, Katie was a Regional Marketing Director, with a prominent assisted living company that focuses on Dementia and Alzheimer's. She was blindly hit with the diagnosis of a rare cancer in her sinuses and right eye. Gratefully, she is cancer-free. What remains from this cancer is chronic migraine. She has been fighting chronic migraine thirteen years. Katie joined the Miles for Migraine team in January of 2019, assisting with many aspects of their events. In addition, Katie works with the bringing volunteers on board to raise awareness for Migraine and Headache Disease. She also manages the Miles for Migraine Community Support Groups in efforts to engage and offer support to those with Migraine and their caregivers across the country. Working with Miles for Migraine has helped Katie regain her confidence utilizing her skill set to advocate for a cause that is dear to her. Katie attended Headache on the Hill this year, and was inspired by the work being done in Washington, DC. to advance funding and research on behalf of those with Migraine and Headache Disease.
Sharon Rhodes is a mother of two, and a full time care-taker of her parents. She has lived with migraine disease for over 35 years, and became chronic 15 years ago. Living with chronic migraine prompted her into migraine and headache disease advocacy, and has participated in various migraine disease studies. Sharon has been active in researching alternative methods to alleviate pain, continues to search for possible migraine attack triggers and learns all she can about migraine disease.
Sharon is the facilitator of the monthly, Buffalo Miles for Migraine, Migraine Community Group, formerly the Western New York Migraine and Headache Disorder Support Group and works with the Chronic Migraine Awareness, Inc. ARMS (Advocates Removing Migraine Stigma) program, ECHO (Education Council for Headache Online) and is a U.S. Pain Foundation Ambassador. She continues her advocacy by participating in letter campaigns to ICER (Incremental Cost Effective Ratio), Congress, and The Buffalo News.
Volunteering and advocating has given Sharon a sense of purpose and belonging. She finds helping others not lose hope living with migraine disease empowering. Being part of the migraine disease community makes her feel less alone and helps her continue to fight through her pain day after day.
One of Sharon’s goals is to help research moving forward so others do not have to experience this disabling, neurological condition. She wants migraine sufferers to have the opportunity and ability to get their life back.
In her free time, Sharon enjoys being outside and capturing photos of nature and making photo books. Sharon also has a son who lives with migraine disease.
Anikah has had migraine since childhood but was diagnosed with chronic migraine with aura in 2015 after experiencing a severe migraine for nearly a year. She was just starting her PhD in epidemiology when her migraine attacks became daily episodes. Trying to manage her condition amidst full-time work and school, Anikah felt alone and as if no one understood the gravity of what she was suffering through. Learning more about her condition and connecting with others in the migraine community, Anikah felt the strong urge to join the movement and advocate for herself and others.
She joined her first Miles for Migraine Walk/Run in the fall of 2018 and increased her involvement in the Migraine Patient Education Days and RetreatMigraine as well as other events. In 2019, she trained with the US Pain Foundation to become a support group leader. Personally understanding the challenges associated with traveling for in-person meetings, in January 2020 Anikah worked with Miles for Migraine to host and lead the first ever weekly Miles for Migraine national virtual support group. There are over 85 registered participants and it continues to grow daily. Anikah continues to share her journey and experience in an effort to increase migraine awareness and provide support to those suffering from migraine and their families. Whether it is migraine or another chronic condition, she wants everyone to know, "You are not alone."
Deborah is an advocate living with Intractable Chronic Migraine. Always drawn to wanting to help, Deborah has held employment in the fields of non-profit Human Services and Behavioral Health. Due to increasing debilitation from Migraine disease, after medical leaves and continual decreases in her working hours, Deborah was forced to leave a career that she loved, working with patients with dual diagnoses related to Substance Abuse Disorder and mental health. Deborah began her journey with Miles For Migraine at the first Philadelphia race. Shortly thereafter, observing the hesitancy of those living with Migraine to speak openly about their disease, Deborah started a public Facebook page, Her Migraine Life, on which she openly shares about her experiences related to Migraine. She is passionate about education, self-advocacy, and especially, countering Migraine stigma. Deborah is a Philadelphia native.