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Miles for Migraine Volunteer Appreciation

It is Migraine and Headache Disorder Awareness Month. Although it’s June, we have volunteers that work year-round to make it a better migraine world. We’d like to introduce you to and show some extra appreciation to some of our most active volunteers. Without volunteers, non-profit organizations can not function. Volunteering for Miles for Migraine comes…

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Jeopardy Contestant Discusses Living with Vestibular Migraine

Jeopardy contestant

In this interview, a Jeopardy contestant discusses living with vestibular migraine, competing on the game show, and advocacy. Below, are the interview questions and answers from Nicky with their experiences. Can you give me a bit of background on your life with migraine? I had 24/7 dizziness since 2011, and I had a horrible dizziness…

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Every Action Counts: Why Advocacy Matters

Every action counts when it comes to advocacy. But how can I get involved and why is it important? If we want a cure and change in migraine stigma, we all need to stand up and be counted.  Advocacy increases awareness to initiate change. Every action counts because it gives those that are stigmatized a…

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Movement Matters: Body, Mind, Advocacy

Welcome to 2021, Warriors! This year Miles for Migraine is running with the theme Movement Matters: Body, Mind, and Advocacy. But what do those terms mean exactly and how do they fit into the life of those living with migraine? Let’s break it down. Movement can sound like a challenging or even impossible task for…

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Volunteer Spotlight on Heidi Brehm

Heidi-Brem

How did you get involved with Miles for Migraine? After watching an interview with Miles for Migraine founder, Eileen Jones, I attended a planning meeting for an upcoming local race, but spiking migraine symptoms restricted my ability to further volunteer and I was unable to attend the race that year. Since then, I have enjoyed…

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Toni Vadala’s Advocacy Story

Toni-Vadala

Toni Vadala’s advocacy story is written and told by Toni Vadala and edited by the Miles for Migraine team.  Miles for Migraine’s Advocacy Stories highlights the many different ways that health advocacy shows up as individuals advocate for themselves and others. This project is not limited to migraine and other headache disorders, nor is it limited…

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Volunteer Spotlight on Sharon Rhoades

How did you get involved with Miles for Migraine? My journey of becoming an advocate for Miles for Migraine started a little over a year ago, I wanted to be with people that understood my disease. I also wanted to be able to tell my story about the information that I have learned to help…

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Volunteer Spotlight on Diane Fox

How did you get involved with Miles for Migraine? I saw the flyer for the Philadelphia Miles for Migraine race on the desk of my headache specialist. I was so excited that something like this existed for migraine disease. I went by myself to the race. It was a thrill to meet and talk to…

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The Mind-Body Connection: Managing Migraine

The Mind-Body Connection: Managing Migraine Mindfulness Practices While some people may still consider the mind-body connection New Age theory, it’s emerged as a bonafide medical phenomenon with evidence-based science to support it. At the core of the mind-body connection, mindfulness has enjoyed a tremendous surge in popularity in the past decade, moving from a mostly…

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Volunteer Spotlight on Kelly Amspacher

Kelly Amspacher

How did you get involved with Miles for Migraine? I became involved with Miles for Migraine 3 years ago and wish I would’ve become active much sooner.   My Headache Specialist told me about Miles for Migraine for many years but with intractable chronic daily migraine and a daughter playing field hockey year round throughout her…

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Be Gentle: The Effects of Gentle Movement & Exercise on Migraine

Be Gentle: The Effects of Gentle Movement & Exercise on Migraine Anyone living with migraine is no stranger to searching Google for ways to prevent migraine, ways to relieve migraine, and ways to alleviate migraine. And there’s a good chance that those searches suggested exercise as a way to prevent and mitigate migraine. While it’s…

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CBD & Medical Marijuana for Migraine

Migraine, is a complex and often disabling neurological disease, affecting nearly 40 million Americans. Studies have shown that roughly one out of every six Americans and one in five women self-reported migraine. While anyone can have a migraine, women, especially those between the ages of 20 and 45, account for three out of four people…

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Submit Your Most Memorable Advocacy Experience

Advocacy Stories collage

What is one of your most memorable advocacy experiences in your headache disease journey/daily life? Try to recall a time when you practiced advocacy. Perhaps you shared your story, posted on social media, or attended an advocacy event such as Headache on the Hill or a Miles for Migraine event. Looking back on that experience,…

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Moving the Needle – The Patient’s Perspective

by Katie MacDonald Remember how when your computer was really slow you would “defrag”? This would reduce the “dead space” on your disk drive and make accessing the files more efficient. I feel like I am in a constant state of fragmentation – too much dead space that makes it hard for my brain to…

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Help Us Design a T-Shirt and Win a Prize!

Help us design a new special edition t-shirt for our prizes collection. We want to offer more swag items in 2020, and think an informational or inspirational slogan would be a creative way to increase awareness about migraine and / or headache diseases. For example a shirt that has a double definition on the back,…

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